Thera and friends are coming together to raise money for Ava Rose & NTSAD.
Ava Rose was diagnosed with Tay-Sachs disease, a fatal genetic disorder, most commonly occurring in children, that results in progressive destruction of the nervous system. To find out more about Ava and her family watch this video from Hybrid Color - http://bit.ly/littleavarose
National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) supports families and adults touched by a group of rare diseases including Tay-Sachs. The hope of building healthy families is a strong focus as awareness is raised about these inherited and recessive diseases and the genes that can pass down from generation to generation...quietly and unnoticed. But, the single area that has our attention is the need to prepare for clinical trials that we hope are closer to fruition than ever.
SPONSORED BY: Williwaw Social, Shirts Up, KWHL Alaska's Rock, Kaladi Brothers Coffee, The 49th Supply Co., Double Shovel Cider Company, Bread & Brew Alaska, & more...
ALSO PLAYING: The Eternal Cowboys & Bad Friday
HOSTED BY: Tha Panda Bear
Raffle prizes will be given throughout the entire night!
If you are not able to make it to the show - you can still donate to AVA and NTSAD at https://www.gofundme.com/f/LittleAvaRose